The Journey Ends

#MySundayPhoto – The Journey Ends

This week I have been sharing our past experience having a baby with Plagiocephaly and his journey through corrective Helmet treatment. This is a topic that I hold close to my heart as it was a big part of our life during Finlay’s first year. Especially as there was and remains little advice and support from the NHS. Although many cases of the syndrome are only mild and self-correct, for the more severe cases this is often not true and help and advice is hard to come by. Often by the time you get the answers you need, it is too late to treat without the need of a corrective helmet. For some even this is too late.

Finlay was five and half months before I took matters into my own hands and contacted a private clinic. At this point, I didn’t even know what his condition was called. We were lucky, although he was diagnosed with severe Plagiocephaly he was still young. He shouldn’t need to be in a helmet for long and we should see good results.

testing testing testing

Finlay’s Helmet treatment lasted about 101 days. It was tough. It would cost over £2000 with regular visits to the treatment centre which was an 86 Mile round trip. We did regular fundraising events and press releases. There was lots of questions and lots of stares. It was the height of summer, it was sweaty and stinky, but the end result was worth it.

The day the helmet came off was a significant moment for Finlay. Although it was only 101 days that was over a third of his little life. Taking the helmet off for the last time was a surreal moment and we felt a little lost. We did not want to put the helmet away in the back of the cupboard, so we placed it on a teddy and sat it on Finlay’s top shelf and snapped this picture to mark the end of Finlay’s Helmet Journey.

sig

Photalife

Save

12 comments on “#MySundayPhoto – The Journey Ends”

  1. I can’t imagine what that must have been like for all of you. It’s great that you’re raising awareness about it. Do you think Finlay missed having it on at first? I think it’s nice that you’ve kept it. A reminder of how far you’ve come. #MySundayPhoto

    • I think he was too young to really understand it all, I think he probably felt he had a cold head!! but they adapt so quickly, to A) having it on and B) No longer needed it! x

Leave a Reply

Your email address will not be published. Required fields are marked *